Background
In the last decade, increasing numbers of NHS hospitals are using electronic systems to routinely record data on the health of patients (electronic health records; EHR), including those who have advanced liver disease. The information that is recorded electronically includes results of blood tests, medical and surgical diagnoses, radiological images, and hospital admissions.
Novelty & Importance
The anonymous use of the data contained in the EHR can be enormously valuable for researchers interested in understanding the reasons why patients with advanced liver disease develop more health issues and die earlier than the general population. Firstly, EHRs can be used to define in great detail and at a very large scale how the health of patients with liver disease evolves over time. Secondly, EHRs are part of routine clinical practice and therefore obtaining these data does not incur in additional costs. Thirdly, given that the information recorded is in electronic format, it can be readily analysed using cutting-age computer-based statistical packages to speed up the process of scientific discovery
Aims & Objectives
To maximise the use of electronic healthcare records as a method of improving patient outcomes following treatment for different advanced liver diseases. Once combined from different sources, the routinely collected data will be anonymised and used to answer a large number of patient driven research questions. As part of an ongoing process, we consulted patients to identify and answer the questions that are most important to them. These questions included assessing the impact of age, socioeconomic status and immunosuppression on outcomes following treatments for advanced liver disease.

